tag:blogger.com,1999:blog-1224404117670755550.post7345011110392782771..comments2023-11-17T03:17:57.179-08:00Comments on Don't be nevus!: A bittersweet homecoming.Alexis KThttp://www.blogger.com/profile/01732808728920806528noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1224404117670755550.post-11082410653460787022014-06-24T12:39:22.270-07:002014-06-24T12:39:22.270-07:00Hi Erin and Alexis,
First of all, I'm so sorr...Hi Erin and Alexis,<br /><br />First of all, I'm so sorry you are going through all of this. As the mom of a child with an intractable epilepsy, I wanted to offer a couple of lessons learned that may give you a little break from what I know is a very stressful situation. First, check with Valley Mountain Regional Center to see what services you may qualify for. We receive in-home nursing care and several in-home therapies through its comparable organization in Sacramento. You may need to sign your son up for MediCal through a waiver process to access some of the services. It’s a daunting process, but well worth it in the end. <br /><br />Check with your neuro regarding prescribing a pulse ox for sleep. That way you can set an alarm and get some sleep. <br /><br />Finally, if you think you may head in the MMJ direction, check out the Realm of Caring to get on the waiting list for Charlottte’s Web. We haven’t gone that direction yet, but will if our daughter fails another medication (we are on our 7th). <br /><br />Hang in there, it does get easier.<br /><br />AprilApril Fontainehttps://www.blogger.com/profile/05397655458792786277noreply@blogger.comtag:blogger.com,1999:blog-1224404117670755550.post-40893760216705547122014-06-23T19:22:45.418-07:002014-06-23T19:22:45.418-07:00Praying for strength and love for you guys. May Go...Praying for strength and love for you guys. May God give you patience and fortitude as you endure and all the love the world can give. Anonymoushttps://www.blogger.com/profile/05063693233595970144noreply@blogger.comtag:blogger.com,1999:blog-1224404117670755550.post-67916053141185014882014-06-23T14:37:51.099-07:002014-06-23T14:37:51.099-07:00I keep thinking of this precious boy, checking FB,...I keep thinking of this precious boy, checking FB, thank you for the update. I watch that video with tears streaming and thanking god for the incredible and amazing parents this angel has been blessed with. Sending you so much love and prayers that something sticks and works and makes your days a little more calm and one day a new normal will create itself for your precious family. Lots of love and prayers xoxoxoCourtneyhttps://www.blogger.com/profile/08363940007906183678noreply@blogger.com